Frontiers | The Physical, Psychological, and Social Day-to-Day Experience of Women Living With Endometriosis Compared to Healthy Age-Matched Controls—A Mixed-Methods Study
- Participants reported anxiety, low mood & psychological distress alongside physical symptoms.
- Unpredictable symptoms contributed to feelings of losing control.
- Some women felt they were no longer themselves because of the condition.
- Pain and emotional distress affected social interactions & participation in everyday activities.
It could be helpful for people to see how their mood is connected to their symptoms, helping them recognise patterns between the two and better understand how endometriosis affects their daily lives.
Missing Out: A Qualitative Study Exploring Adolescents’ and Young Women’s Experiences of Endometriosis
- Some young women felt isolated because friends didn’t understand their experiences.
- Online communities offered connections with others experiencing similar challenges.
- Participants felt some existing information & support groups weren’t tailored to their age group.
Feeling supported by those around them can help people with endometriosis feel understood, even when others cannot ease their symptoms. Improving communication can help loved ones better understand their experiences and strengthen relationships.
Challenges of and possible solutions for living with endometriosis: a qualitative study
- Participants described anxiety, stress, helplessness and uncertainty about their condition.
- Uncertainty about symptoms and whether the condition would return contributed to emotional strain.
- Participants wanted to take an active role in managing their condition, but the emotional burden could affect everyday life.
Coping tools could help people feel more in control of their bodies and better manage the challenges of living with endometriosis.
Self-Management Among People Living With Endometriosis: A Qualitative Study